Dating With Sickle Cell Can Be a Psychologically Damaging Affair
When Damian Jackson was a young man, some lawyers helped his family out. I thought it would be a good thing to go into if I could. Damian Jackson has had sickle-cell disease his entire life. This could be attributed to a balanced diet, enough rest and regular exercise. Crises are caused when oxygen-carrying red blood cells become distorted, forming a sickle, or crescent shape. The pain is immense, and during his last crisis Damian was unable to do anything else than reach for the phone and dial , before spending three days in the hospital. But these episodes have been rare, and despite a few aches and pains, Damian just gets on living the best life he can: lifting weights and running on the treadmill each morning, going to the movies and spending time with his wife of fifteen years, Dionne. I am very fortunate that my case has been mild for the most part throughout my life.
Real Stories from People Living with Sickle Cell Disease
Sickle cell disease is a disorder passed down through families. The red blood cells that are normally shaped like a disk take on a sickle or crescent shape. Red blood cells carry oxygen throughout the body. Sickle cell disease is caused by an abnormal type of hemoglobin called hemoglobin S.
Voxelotor (Global Blood Therapeutics) is an HbS polymerization inhibitor; L-gluatmine, an amino acid approved for treatment of sickle cell disease. Date of review.
Sickle cell disease is a group of red blood cell disorders that are passed down from your parents. This means that it is a genetic disease, and you are born with it. People with sickle cell disease have some red blood cells that are shaped like a “sickle” or crescent, instead of round.
In Nigeria, your genetic makeup can decide if you get a second date
Study record managers: refer to the Data Element Definitions if submitting registration or results information. This study will collect representative blood samples from healthy children and adults and from children and adults who have unique red blood cell features that are related to sickle cell disease. Sickle cell disease is a blood disease that limits the ability of red blood cells to carry oxygen throughout the body.
The purpose of the study is to collect a variety of blood samples that may then be used to investigate advances and potential new drug treatments for sickle cell disease. Volunteers must be at least 8 years of old. Samples will be taken both from healthy volunteers and from volunteers who have unique red blood cell features that are related to sickle cell disease.
Atom · RSS Feed. Sickle cell disease. Definition. Sickle cell disease is an autosomal recessive blood disorder that can lead to anaemia. It is caused by a.
You can take many steps to stay as healthy as possibly with sickle cell disease. One of the most important steps is to work closely with your care team. Print this checklist, and talk with your team about each recommendation on the list. If your blood counts especially neutrophils and platelets get too low, your team will reduce your dose. The best dose decreases your blood counts a lot but not too much.
Taking the best dose can help prevent pain crises and keep you out of the hospital. Take your hydroxyurea and folate every day as prescribed. Because of sickle cell disease, your spleen might not work well or might have been removed. This puts you at increased risk for infection. To help protect you, we recommend getting certain vaccines.
Screenings can check for signs now that could turn into big problems later.
Sickle Cell Disease: Advances in Treatment
Sickle cell disease SCD is an inherited blood disorder. It causes the body to make abnormal hemoglobin. This is the protein in red blood cells that carries oxygen to all parts of your body. Healthy red blood cells are round and move easily all over the body. With SCD, the red blood cells are hard and sticky.
Sickle Cell Disease: Preventing Problems and Staying Healthy
The findings can lead to an alternative pain option for patients with sickle cell disease. Medical marijuana may reduce hospital visits in patients with sickle cell disease. In fact, those with the condition who requested and obtained medical marijuana to treat pain were admitted to the hospital less frequently than those who did not.
William P. Winter, Ph.D. In the annals of medical history, is regarded as the date of the discovery of sickle cell disease, making
Many of these complications come into play on a psychological level , but there have also been occasions where I take sick after sharing intimacy with a partner. In this diary, I will explain my experiences in hopes that readers and sufferers will understand. I lost my virginity later than most. I was likely seen as an outsider and unattractive to the opposite sex as a result. I was fortunate enough to have a girlfriend who understood what Sickle Cell was.
She even had a best friend who suffered from the disease.
Sickle Cell Disease
Dating someone with a complex medical condition like sickle cell can be very challenging, but also achievable. Before deciding to date a sickle cell individual, educate yourself thoroughly on sickle cell to understand the general idea of what you will be signing up for. In addition, get tested at the hospital to know your genotype status; If you are AA, then you have no chance of passing on the sickle cell disease if you do have a child with someone that has sickle cell disease.
Your offspring will have the trait however, and must be properly educated on how to avoid passing the disease on to the next generation. However, if you are AS, then more deliberation is needed. This means that you are a carrier of the trait of sickle cell, and that you have the potential to pass the full blown disease on to your children if you mate with a sickle cell warrior SS.
Rana G Zaini · Received date: June 01, ; Accepted date: June 08, ; Published date: June 15, · Citation: Zaini RG. Sickle-cell anemia and.
Citation: Zaini RG. Sickle-cell anemia and Consanguinity among the Saudi Arabian population. Arch Med. This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Sickle Cell Disease SCD is one of the most common severe autosomal recessively inherited blood disorders.
In Saudi Arabia, the prevalence of this disease is significantly varied in different regions of the country, and the highest prevalence in the Eastern province of the country. This causes the Red Blood Cells RBCs to change from the normal biconcave disc shape to an irregular sickled shape [ 2 ]. Thus, sickled RBCs can clog blood vessels, preventing normal blood flow and decreasing delivery of oxygen to organs and tissues. Individuals with Hb SS sickle cell anemia are most severely affected [ 2 ].
The carrier state for sickle cell disease is often referred to as “sickle cell trait” and those individuals do not express the disease, however, this might be a risk factor for sudden death during physical training [ 2 ]. Sickle cell disease SCD is the most predominant form of haemoglobinopathy worldwide [ 3 ]. However, statistical data about the prevalence of SCD in the Arab world is patchy [ 4 ]. Sickle cell disease is also associated with significant mortality.
The highest mortality rate was observed among children between 1 and 3 years of age and adolescents younger than 20 year [ 8 ].
ICER will assess the comparative clinical effectiveness and value of treatments for sickle cell disease:. For questions, please contact Catherine Koola, Program Manager, at ckoola icer-review. Due to the COVID pandemic, we have decided to indefinitely postpone our upcoming public meeting on therapies for sickle cell disease originally slated for March Please refer to the sickle cell disease evidence report for our most updated findings. ICER will assess the comparative clinical effectiveness and value of treatments for sickle cell disease: Crizanlizumab Novartis is a P-selectin inhibitor Voxelotor Global Blood Therapeutics is an HbS polymerization inhibitor L-gluatmine, an amino acid approved for treatment of sickle cell disease Date of review: March For questions, please contact Catherine Koola, Program Manager, at ckoola icer-review.
Should I Date Someone with Sickle Cell? One thing i have noticed however is that we tend anemia be like by most people so i told myself not date anymore.
National Sickle Cell Disease Awareness Month is a time to acknowledge the challenges faced by Americans with sickle cell disease SCD and to reaffirm our commitment to increasing the quality, affordability, and accessibility of different treatment options. SCD is an inherited red blood cell disorder that is most prevalent among those who have ancestors from sub-Saharan Africa and certain regions of South and Central America. Beginning in early childhood, people with SCD experience a lifetime of crippling pain, challenging disabilities, and often premature death.
While American research and innovation have led to medical advances that provide a wide array of treatments for improving the prognosis of children living with SCD, many can be used only for a specific subset of patients. Far too many patients who could benefit from treatments such as stem cell or bone marrow transplants are not identified until they have already experienced a debilitating medical episode that causes irreversible organ damage.
The National Institutes of Health is working to address this through research to identify children who are more likely to suffer from severe SCD through genetic modifiers.
Information About COVID-19 for Sickle Cell Disease Patients
Sickle cell disease causes significant morbidity and mortality and affects the economic and healthcare status of many countries. Yet historically, the disease has not had commensurate outlays of funds that have been aimed at research and development of drugs and treatment procedures for other diseases. This review examines several treatment modalities and new drugs developed since the late s that have been used to improve outcomes for patients with sickle cell disease.
But in Nigeria, the first date conversation is more likely to be about your dating someone who carries the genes that cause sickle cell disease.
But in Nigeria, the first date conversation is more likely to be about your DNA than if you watch ‘Grey’s Anatomy’ or where you like to vacation. Chat with us in Facebook Messenger. Find out what’s happening in the world as it unfolds. More Videos Graphic by Abdulwahab Oshomah Abubakar Many people don’t want to waste time dating someone who carries the genes that cause sickle cell disease SCD. The likelihood of this happening is very high in Nigeria, which has one of the highest incidences of the lifelong disease in the world.
Communications specialist Damilola Ogunnupebi recently got married in Ogun State, southwest of Nigeria but paramount in her dating journey was the search for a partner with the right genotype. All my dates had the ‘what is your genotype? A genotype is the set of genes in a person’s DNA responsible for a particular trait, and genotypes are considered important in Nigerian relationships because they determine who sickle cell disease carriers are.
Read More. SCD is the world’s most common hereditary blood disorder, and many people who are interested in having children, like Ogunnupebi, emphasize genotype testing to avoid giving birth to children with the disease.